8 South Again

Marshall is back in the ICU.  It is not the best way to celebrate Michael’s first Father’s Day but it also isn’t the worst. So far, the starting of the IV meds has gone as expected.  Marshall gave the nurses a heck of a time in placing the IVs.  I warned them before they started […]

Everybody’s Hedging

Yesterday Marshall (again) reminded us that he is the man in command. He is the number one caller of shots. He is the ginger little dude in charge. His follow up appointment with Dr. Friedman and the transplant team left us with a whole bunch of unknowns. There really isn’t a plan at this point. […]

For now

With Marshall not feeling well, I spend much of my time dancing and rocking and bouncing to keep him comfortable.   So I am generally too exhausted to write.  Please forgive me. For now the team is trying meds then bigger meds if these don’t work. More tests on Monday. His case will be presented at […]

Cath Circus

Sooooo Marshall’s cath was full of all kinds of things to make it more interesting.  Highlights (?) included our late arrival (oops on me for savoring more time with Marshall), difficulties in even placing the cath, a wait for the book incident I will call “A Fellow Blood Spray,” a question of whether to place […]

Cath

(Sidenote: there is a song of the same name as the title of this post.  I can’t stop “hearing it” in my mind.) Marshall was “loopsie” as his oldest brother calls it when we left him with the catheterization team minutes ago. That was a tough (ridiculous understatement) moment. He is in good hands for […]

Upstate all nighter

Marshall has been admitted to upstate.   We don’t know much of anything yet despite eight hours in the E.R.  He was retching, vomiting, and turning all colors between 5 -6:30 tonight.  So I held him, cleaned him up, and totally panicked. Two emails and one call to Boston later we ended up here.  He slept […]

Happy (Belated) Memorial Day

My mom gave me the “You need to update Marshall’s blog more!” talk yesterday. In my defense, I have a lot going on in my life with four wild ones, marriage, work, and life. Throw in a baby too big to hold with just one arm, a couple of technical glitches, and going through a […]

More Shots = Sleepless & Screaming

Holy Hannah, I never knew Marshall could scream as much as he did since getting his shots on Tuesday. And I never knew how tired tired could be until this week. Eighteen (plus) weeks of not sleeping through the night combined with hourly wake ups made for some tough times. But those times always remind […]