I have to start off by saying: THANKYOUTHANKYOUTHANKYOUTHANKYOUTHANKYOUTHANKYOUTHANKS ALL OF THOSE GOOD THOUGHTS AND BIG PRAYERS ARE WORKING!! Today’s cardiologist appointment was full of good news. Marshall gained 1.5 lbs and grew 1.5 inches in the past two months. The echo went well. The gradient measurement is the same. His heart function has improved a […]
…And to think I was willing to pay this out of pocket just over one year ago….
Marshall sees Dr S this afternoon… Fingers crossed, hope high
Marshall is shedding fluid like a champ. And the team has begun the process of getting rid of things. They took him off dopamine. They took away the pacer. His saturations are great. His pressures are great. They also slightly decreased the oxygen in his vent. And there is mention of getting his chest closed […]
We Just talked with Dr Baird Surgery was a success. We now need to wait and see how the recovery goes. If he makes it through the next 8 hours, his chances will be very good. As for technical details, Dr Baird repaired the total anomalous pulmonary venous return and attached them where they belong […]
Marshall made it out of the O.R. and just got to the ICU That’s all we know. We are still waiting for Dr Baird.
I passed my baby off eight hours ago. I tried not to cry. The only experience I can equate the.feeling of passing Marshall off to OR Nurse J, an anesthesiologist, and a doc is it is a step above holding my dog at the vet on her last day with me. My. God. This. Is. […]
Celebrating early today with a nap because of this afternoon’s events… Yesterday’s cath knocked a lot out of Marshall and all he really has been doing is sleeping and eating. Which is good. My hope is he is laying here in my arms gathering his strength. Please keep our EIGHT month old baby and his […]
I just received the latest from Marshall’s team in Boston: his cath and Glenn will be in late September. Unless Marshall’s oxygen saturations decline then it will be sooner So it is back to isolation for Marshall and me in the weeks between then and now…. Breathe, Rebecca… Please send good thoughts, prayers, and any […]
Marshall’s apointment with Dr Friedman went well. We have to have some blood work done and we will be on OUR WAY HOME 🙂 Echo looks good. Marshall looks great. He has gained some so it is a matter of optimizing his calorie intake…will fiddle with that after speaking with nutritionist. We will need to […]
themiracleofmarshall 