For the past week or so, Gio and his family have been on my mind. Gut instinct led to a series of tearful updates (I broke my 6 month Facebook hiatus.) Gio made the news wearing his milrinone backpack. Please send some love, good thoughts, or huge prayers (and whatever you believe in) to Gio, […]
Marshall and I finally had the opportunity to meet Noah’s mom, Amber, his big sister, Morgan, and his set-to-arrive-within-9-weeks little sister, Harper. We all had a wonderful dining experience complete with Marshall showing off his impeccable toddler skills in a crowded restaurant ;-). And Marshall and I finally had the chance to give our thanks […]
Cardiologist appointment went GREAT! HE DOESNT WANT TO SEE US AGAIN UNTIL JULY!! Gradient changed a little but only because Marshall weighs in at a record breaking 20 lbs 6 oz!! Oooh and he grew 1/2 an inch 🙂 Marshall’s heart function has improved slightly too. A few meds changes and we’re off for lunch […]
Dr S informed us Marshall had Heterotaxy. Just eight and a half weeks after the wild boys and I had this talk by the creek. I remember the absolute terror I felt after that “Heterotaxy Diagnosis” appointment with Dr S. How I called my mom hysterical in the car on the way home. How once […]
Marshall ROCKED THE CATH!! He is extubated, stable, been fed twice, and in the luxurious new section of the 8 East floor. That’s right: he bypassed the bed waiting on standby in the 8 South ICU. Dr Friedman consulted with us as they were waking and monitoring him post cath. The problem seems to be […]
Marshall had his appointment with his pediatrician today and everything seems great! Plus he had the chance to flirt with some of his favorite ladies. :-). Marshall’s pediatrician did find some fluid in his ear. Perhaps this is the reason for his post-op fever?? If it was something as simple as a teething related ear […]
Dr. Friedman stopped by yesterday after Marshall kicked his atrial lines and moved over to the floor. Even Dr. Friedman agreed “Marshall is progressing so well.” Yesterday he made lots of progress despite being quite irritable and out of it. He lost his chest drains, then had chest xrays (which looked good), they lowered the […]
This is how we left him…happily laughing (and just a little “loopsied” as Tristen once said.) He is having his cath now. The team is going to try to place the stent (super cringe), check out and perhaps coil (cringe) the collateral arteries, peek at the coronary arteries (in July they discovered via CT scan […]
…when you are dragging your heels to your son’s hospital room and three of your favorite nurses are your welcoming committee. When we first hit the floor, Nurse J encountered us in the hall on our way to our room (a private, luxurious, spacious place with a mini fridge in the new section of 8 […]
If I had a quarter for every time someone said to me “He doesn’t look sick,” I would not have to worry about the over $2500 of Marshall’s medical bills that have gone to collections. Nor the over $15000 plus I have paid in deductibles, housing, food, gas, parking, supplies, medicine, etc… Yes I could […]
themiracleofmarshall 