Eight days ago Marsh played outside for two hours and walked .6 of a mile home (the longest walk he has ever taken🎉). Then we had a great report from Super Smith. And now we are here in Upstate waiting for results. The fever keeps returning in the late afternoon and Marsh’s respiratory system is […]

Marsh has developed a 🤞 summer cold/illness that made the weekend really tough. The good news is Marsh has turned it around 180% from where he was Saturday afternoon. We are following up with his pediatrician in the a.m. so if you all could please some really healthy thoughts and/or huge prayers, they will be […]

Marsh had his Super Smith (Syracuse cardiologist) visit and it went well. The echo is good. The pulmonary gradient is up 1.5% to 7mm. Dr. Smith has reached out to Friedman to🤞 kick out cath longer because Marsh is doing so well and because Boston is swamped. So long as everything’s stable, it is looking […]

Marsh had his pair of strokes following when this picture was taken. For one so small, he has been through so, so much. I am so thankful for all of those good thoughts and prayers. Without them I am certain he could not have made it this far. Please keep them coming. Hugs and love […]