Today has been a very difficult day for Marsh. His antiarrythmic wean has not been going well. We are waiting to see Dr. Smith still. I will update more later. Please send those good thoughts and hefty prayers. Hugs and love and so many thanks ❤

Not much to report. Marsh is sleeping or resting comfortably-ish though he is pretty grumpy. He is allowed to eat and drink again. Still have not spoken with cardiologist about echo or ekg. They just started iv digoxin to act as a bridge between the antiarrythmic and where he needs to be. And they titered […]

Marsh had a mostly quiet night. His heart rate is hovering in 120s with iv antiarrythmic. Respirations were slightly off baseline. Xray showed fluid in the lungs and some enlargement of his heart. Labs came back still skewed. He is resting comfortably. We are waiting for cardiologist to begin a more solid plan. I reached […]

Greetings from Upstate Golisano Marsh had what looked like the stomach bug. A check of his o2 saturations indicated that his heart rate was in the 200s. He is in SVT (supra ventricular tachycardia) on call cardiologist is trying iv anti arrhythmia meds. They are not working. Waiting for more info. Please send some good […]

Marsh’s belly had a rough night (and we all had a long one)…zzzz. 🤞 he feels better in no time

It has been one year since Marsh’s last (and failed Fontan) surgery. Life forever changed that day one year ago. And it will never be the same again.