Dr. Smith was here at 6 pm reviewing yesterday’s events. And stayed for hours. Dr. Smith is convinced that if anyone can turn this around it is Marsh. Marsh had a mostly quiet night. The only change is they had to go up on oxygen. Xray showed no change from yesterday. Waiting for labs and […]

Cardio version has been done His heart rate and sats are low. He is on high flow oxygen

But we all know how much Marsh makes plans of his own So thankful for this ginger boy❤

I didn’t too much celebrate the arrythmia break knowing Marsh as I do. In fact, I asked a family member regrettably what he would do next… As for the bad night: Marsh had been mostly stable and sleeping. But a mess. The night brought only 6 hours of relief from the arrythmia. Then restarting of […]

The arrythmia broke. A fluke yet none the less scary desat and poof: His resting heart rate is normal.

Dr Smith is at a Binghamton outreach today and not here again tomorrow. On call cardiologist and another cardiologist from the Syracuse team evaluated Marsh via echo this a.m. They determined that the atrial flutter is somewhat settling down. It is not gone but not as bad as it is without the iv cardizem on […]

The plan was to correct the atrial flutter via electrical means but the plan has changed some for a while. Team is reconvening and 🤞 reaching for Friedman as well.

Marsh has been with us 2,099 days (yes I am still counting)💖 One year ago today we were bringing him home from Boston post 3rd surgery. 92 days until he turns SIX!🥳

The vicious ferocity of this heart disease ravaging our precious boy can only be described as a heart storm. But I am neither a cardiologist or meteorologist. I am just his mom trying to assist, process and digest. And I risk rambling… Marsh did not tolerate the cardizem wean well yesterday. And his fluid balance […]