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themiracleofmarshall

one little heartbeat at a time

Category Archives: Great Minds Think Alike

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Post Cath

October 17, 2019 by mamawillloveyouforever

Cath Dr. Esch and Friedman met with us at around 4:30 p.m. and 5:00 p.m. Forgive me for the delay. I am still trying to process: Marsh is comfortable and resting. We napped then watched The Grinch and The Cat in The Hat. He is extubated. He is in moderate heart failure. He has moderate […]

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Cath update 5

October 17, 2019 by mamawillloveyouforever

They are now dilating the left veins and will be wrapping up in the next hour or so. Then we meet with Dr Esch (the cath lab doctor)… And finally see Marsh once he is settled on 8 South

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Cath update 4

October 17, 2019 by mamawillloveyouforever

More dilating of the veins

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Cath update 3

October 17, 2019 by mamawillloveyouforever

Balloon dilating the veins now. Will be a couple of more hours.

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Cath update 2

October 17, 2019 by mamawillloveyouforever

They just called with the update. They drained a significant amount of fluid off of the right lung and his saturations came up. He stable and he is ok. The cath doctor is doing the measurements right now in terms of function, pressures, and such. They will update me (and you all) in another hour.

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Cath update 1

October 17, 2019 by mamawillloveyouforever

The cath nurse just called. He laughed all the way to sleep. Old iv out, new in. Gaining access now. Cath is underway officially once the sheaths are placed

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Cath has begun

October 17, 2019 by mamawillloveyouforever

They took him back. They will call in an hour with an update.

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8 South Day 1

October 17, 2019 by mamawillloveyouforever

Morning from 8 South! The night was the same as they have been since the cardioversion. He is sleeping peacefully after staying up late eating popcorn and lemonade. Echo is underway now. Cath mid day. Plans after the cath may include a pacemaker depending upon cath findings. Hugs, love, and thanks❤

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And Marsh is back…arrived in Boston around 7 p.m.

October 16, 2019 by mamawillloveyouforever

Thank you to Upstate and the home team.Thank you for the safe ride AMR with Miss Melanie, Miss Mary, and crew.Dr Friedman was part of the welcoming crew here at 8 South.The plan is snacks tonight.Cath tomorrow unless he is bumped…

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Looks like we are leaving today

October 16, 2019 by mamawillloveyouforever

Within an hour or two For Boston

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I want to tell the world how much I love you because I don’t know how much time we’ll have heart to heart

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Think of the number of lives we could help if we could.

When I don't know what to do, I defer to people with greater knowledge, greater wisdom, greater experience, and greater perspective.
And Marshall's health is no exception.
The difference between life and death for hundreds of babies, like Marshall, born with special hearts, comes down to a lot of things. But in the process of securing the help Marshall needed, I found it often came down to knowledge, money, resources, and access to information.
We're working as hard as we can to gather all of the above. And sometimes that just isn't enough.
You may check out the fundraising website some truly incredible people set up for our family by going here
Any donations we receive will be designated solely for the purpose of ensuring Marshall gets the best care we can offer during our time with him. Though I hope that time is long, there are no guarantees. But one thing is certain: every dollar we raise (beyond covering Marshall's medical and travel expenses) will be used to establish a foundation dedicated to helping other families as they manage their child's congenital heart disease and congenital heart defects.
An anonymous donor once offered to match every dollar in donations up to $10,000. For his or her support, help, and prayers there are not words enough to ever repay our debt.
Think of the number of lives we could help if we could.
Please help if you can.

With Supreme Gratitude, Our Family Offers Our Thanks to:

Dr K Nurse T Sonographer E Dr. E Dr. S Sonographer C Dr  No Dr  N Dr Friedman The Entire Staff at Boston Children's Hospital Shay Sonographer B NBT Bank Sea Waves Technology Stomping Grounds Art: Books: Gifts Kim at my former insurance The great folks at Blue Cross Blue Shield The Wild Boys Penny Erin Bob and Linda The Baker Family Tammy Roberta Cindy Martha Donna Jim, Rob, & Dan Cassie Martha Rob Patty Pam Sarah Terri The Day Family The O'Connors The Bennett Family Ruth James, Beth, & Lily Micah Jenn Julie Paul Fay Erica Jesi Susan B Sharon Kathy Karen Carin Monica Nichelle Sue M Mary Barbara The Ellis Family The Le Family The Sabino Family Mang Insurance Ryan Mangrum The Class of '97 Laura Rachel Eric Wcom Wendy CompassionNet Alicia Jan Gilligan's Frontier Dollar General Big M Service Pharmacy

Everyone who shared Marshall's links

Everyone who read Marshall's blogs

..and many more!

“It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds; who knows great enthusiasms, the great devotions; who spends himself in a worthy cause; who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who neither know victory nor defeat.” Theodore Roosevelt

“I believe in miracles, how ’bout you?”

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