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themiracleofmarshall

one little heartbeat at a time

Category Archives: Great Minds Think Alike

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Please please please pray/send good thoughts/what have you

October 25, 2019 by mamawillloveyouforever

He was supposed to be discharged. Spiked fever between 103-104 degrees F

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Happy THIRTEENTH Birthday, Sethđź’–đź’–đź’–đź’–đź’–đź’–

October 25, 2019 by mamawillloveyouforever
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Post echo

October 24, 2019 by mamawillloveyouforever

Dr Kane (Friedman’s stand in) just stopped by. The echo looked good. The gradient and function are ok. They want to watch Marsh overnight and 🤞 make plan to get out of here. Please oh please hope, pray, wish, beg, send vibes, what have you to get us back there…

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Echo now

October 24, 2019 by mamawillloveyouforever

After a trip for xray, a roll around the rooftop “garden” in the wheelchair, and a long nap. Pray, hope, wish, think, and otherwise beg the universe to get us back home.

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Chest drain is out

October 24, 2019 by mamawillloveyouforever

And Marsh “is too tired to do anything” direct quote

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Greetings from 8 East

October 24, 2019 by mamawillloveyouforever

Greetings not much to report. Nurse was great at keeping pain meds on board overnight. Marsh woke feeling better today though he is still awfully quiet. Chest tubes are coming out as soon as the floor doctor handles a different situation. More later perhaps…

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Our little grizzly bear

October 23, 2019 by mamawillloveyouforever

Not much to report about the day… Marsh is a little grizzly bear because of the pain in his belly. He just wants to sleep or watch movies. The drain can’t come out tonight as the output is still too great. Today has been difficult all around. Stand in cardiologist (Dr. Kane) stopped in to […]

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Heading out of 8 South

October 23, 2019 by mamawillloveyouforever

Heading to 8 East or 8 West in a few🤞🤞

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The new cardiac center where Prouty Garden is supposed to be

October 23, 2019 by mamawillloveyouforever
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And another walk…

October 23, 2019 by mamawillloveyouforever

Just took 2nd walk and made it 35 ft and back!

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I want to tell the world how much I love you because I don’t know how much time we’ll have heart to heart

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Think of the number of lives we could help if we could.

When I don't know what to do, I defer to people with greater knowledge, greater wisdom, greater experience, and greater perspective.
And Marshall's health is no exception.
The difference between life and death for hundreds of babies, like Marshall, born with special hearts, comes down to a lot of things. But in the process of securing the help Marshall needed, I found it often came down to knowledge, money, resources, and access to information.
We're working as hard as we can to gather all of the above. And sometimes that just isn't enough.
You may check out the fundraising website some truly incredible people set up for our family by going here
Any donations we receive will be designated solely for the purpose of ensuring Marshall gets the best care we can offer during our time with him. Though I hope that time is long, there are no guarantees. But one thing is certain: every dollar we raise (beyond covering Marshall's medical and travel expenses) will be used to establish a foundation dedicated to helping other families as they manage their child's congenital heart disease and congenital heart defects.
An anonymous donor once offered to match every dollar in donations up to $10,000. For his or her support, help, and prayers there are not words enough to ever repay our debt.
Think of the number of lives we could help if we could.
Please help if you can.

With Supreme Gratitude, Our Family Offers Our Thanks to:

Dr K Nurse T Sonographer E Dr. E Dr. S Sonographer C Dr  No Dr  N Dr Friedman The Entire Staff at Boston Children's Hospital Shay Sonographer B NBT Bank Sea Waves Technology Stomping Grounds Art: Books: Gifts Kim at my former insurance The great folks at Blue Cross Blue Shield The Wild Boys Penny Erin Bob and Linda The Baker Family Tammy Roberta Cindy Martha Donna Jim, Rob, & Dan Cassie Martha Rob Patty Pam Sarah Terri The Day Family The O'Connors The Bennett Family Ruth James, Beth, & Lily Micah Jenn Julie Paul Fay Erica Jesi Susan B Sharon Kathy Karen Carin Monica Nichelle Sue M Mary Barbara The Ellis Family The Le Family The Sabino Family Mang Insurance Ryan Mangrum The Class of '97 Laura Rachel Eric Wcom Wendy CompassionNet Alicia Jan Gilligan's Frontier Dollar General Big M Service Pharmacy

Everyone who shared Marshall's links

Everyone who read Marshall's blogs

..and many more!

“It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds; who knows great enthusiasms, the great devotions; who spends himself in a worthy cause; who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who neither know victory nor defeat.” Theodore Roosevelt

“I believe in miracles, how ’bout you?”

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