“Let me eat your phone as you try to catch a picture!”

It was brief.  BUT HE SMILED!!

But they could be much worse. Marshall is not feeling well.  But he seems to be feeling a little better than he did.  So, I will take that for a win for now.  The Boston team is trying new meds and watching him closely to better determine what is going on with him.  They are […]

I.c.u. is behind us (literally) for now!! Yeah little man!!

Dr Friedman and Dr Luis took the time to speak with us  (everybody needs a break from exercising their superheroic powers, right) this a.m. to discuss the findings from the Cath. And at this point, though some findings were pretty certain, a lot is still unknown. We don’t have a plan until Dr Friedman is […]

The familiarity of being back at Children’s is incredibly humbling. Remembering all of the experiences we have had here is so bittersweet. But we got Marshall so it was more than worth it 🙂 We arrived a few minutes past 8 a.m. (thank you, Boston traffic! ) So far Marshall has had his chest x […]

The wild boys had a very, very sad goodbye this a.m. I can’t offer enough thanks to the people who attempted to make this a.m. easier on them. My oldest son and I hugged tight and he said “I want to cry but won’t.”  I welled up. My second oldest son kept his head low […]

We are on our way home for now!!

For home as soon as they release Marshall 🙂 Quality time with the big wild boys and some serious packing for Boston is on the agenda…