Room Air

Marshall has been holding his own without additional oxygen since just before noon!! And his appetite is BAAACCCKK! He has nursed more today than he has all week!!  He still has to show the team he  isn’t losing weight or else…he gets a n.g. tube. They only gave us until tomorrow. But I held them […]

“It’s OK to cry”

We’re at dinner near a restaurant less than two blocks from the ICU where my baby is laying. It’s 9:30 at night. I don’t have enough words to express how thankful I am she’s here. We’re talking about recent events and changes in Marshall’s appetite: the strokes, the post stroke seizures, the breakthrough seizures from […]