It has been five hundred days since the attempted and failed Fontan. We have almost lost Marsh eight times since that day (and, in addition, survived several family crises.) And yet he still stands smiling. Thank you so to all who made (and still make) these dark days brighter. 💖💖💖💖💖💖

Doctor Super Smith appointment went ok. He measured Marsh walking again. Marsh walked more than he did last time by 100 feet. Gradient measures 4mm and everything looks the same otherwise. Marsh even danced and sang for everyone…”Peanut Butter Jelly Time” and we all had a good laugh. No school until flu season passes. Next […]