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themiracleofmarshall

one little heartbeat at a time

Category Archives: Gratitude & Laughter

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One Week Home

February 5, 2014 by mamawillloveyouforever

We have been home one week!!!!! And Marshall is thriving!  His weight is up.  His appetite is huge.  He’s output totally grosses his dad out πŸ˜‰ (but it is awesome having an extra set of hands on diaper duty.) We just had our first hometown cardiologist appt this a.m. Marshall’s “heart looks good” and “echo […]

Posted in Gratitude & Laughter, Hope | Leave a comment

“How do I describe what he is going through?”

February 5, 2014 by mamawillloveyouforever

Marshall’s great aunt Cindy spent the afternoon with us yesterday. What a joy just to sit on the couch and chat with her just the three of us (Marshall, her, & me).  It has been YEARS since we have been able to do that without the interruption (and audience) of the wild boys. As I […]

Posted in Gratitude & Laughter, Great Minds Think Alike | Leave a comment

Greetings from the Mohawk Brothers

February 5, 2014 by mamawillloveyouforever

Thank you to the Leahy’s for the rocking outfit.  Marshall’s brothers put on his hat πŸ˜‰ We are off to Syracuse on this mad snowy day to see our hometown cardiologist. Please send good thoughts. Deep breath…

Posted in Gratitude & Laughter, Hope | 2 Comments

Wait

February 3, 2014 by mamawillloveyouforever

Are they all smiling?!?

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Skimmed milk is gone

February 3, 2014 by mamawillloveyouforever

We ran out of skimmed milk three days early. Frantic calls to the Boston team resulted in ….drumroll, please: Marshall can FINALLY nurse again!!  He will need a chest xray to make sure everything is ok within three days. But. Wow.!!! Marshall has cardiologist appt in Syracuse Wednesday…here’s to more hope. And more coffee.  My […]

Posted in Gratitude & Laughter, Hope | 1 Comment

Happy Three Week Birthday, Marshall

January 30, 2014 by mamawillloveyouforever

To celebrate, WE GOT TO THANKFULLY WAKE UP IN OUR OWN BEDS!!! YEAHHHHH!

Posted in Gratitude & Laughter, Pics | 1 Comment

Home sweet home

January 30, 2014 by mamawillloveyouforever

This was waiting for us with a note!!

Posted in Gratitude & Laughter | 2 Comments

2nd pit stop

January 29, 2014 by mamawillloveyouforever

HEARTS EVERYWHERE The. Irony.

Posted in Gratitude & Laughter | 1 Comment

Xrays & Pink Robes

January 28, 2014 by mamawillloveyouforever

Marshall had his xray this a.m. I carried him down to radiology in my fuzzy pink bathrobe & furry brown slippers.   We got some looks not only from the staff but also other patients. The good news is the preliminary report says it looks like Marshall passed the xray test.  The bad news is people […]

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Marshall as he was listening intently to…

January 27, 2014 by mamawillloveyouforever

OUR DISCHARGE INSTRUCTIONS!!! Dr Friedman and Dr Luis agree the echo looks “Great.” Soooooo if we can get this little man to eat & eat & eat, we can get to that far away place known as “Home.” Which is good.  We are (well definitely I am) exhausted. A parade of visitors evaluated his neurological […]

Posted in Gratitude & Laughter | 1 Comment

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I want to tell the world how much I love you because I don’t know how much time we’ll have heart to heart

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Think of the number of lives we could help if we could.

When I don't know what to do, I defer to people with greater knowledge, greater wisdom, greater experience, and greater perspective.
And Marshall's health is no exception.
The difference between life and death for hundreds of babies, like Marshall, born with special hearts, comes down to a lot of things. But in the process of securing the help Marshall needed, I found it often came down to knowledge, money, resources, and access to information.
We're working as hard as we can to gather all of the above. And sometimes that just isn't enough.
You may check out the fundraising website some truly incredible people set up for our family by going here
Any donations we receive will be designated solely for the purpose of ensuring Marshall gets the best care we can offer during our time with him. Though I hope that time is long, there are no guarantees. But one thing is certain: every dollar we raise (beyond covering Marshall's medical and travel expenses) will be used to establish a foundation dedicated to helping other families as they manage their child's congenital heart disease and congenital heart defects.
An anonymous donor once offered to match every dollar in donations up to $10,000. For his or her support, help, and prayers there are not words enough to ever repay our debt.
Think of the number of lives we could help if we could.
Please help if you can.

With Supreme Gratitude, Our Family Offers Our Thanks to:

Dr K Nurse T Sonographer E Dr. E Dr. S Sonographer C Dr Β No Dr Β N Dr Friedman The Entire Staff at Boston Children's Hospital Shay Sonographer B NBT Bank Sea Waves Technology Stomping Grounds Art: Books: Gifts Kim at my former insurance The great folks at Blue Cross Blue Shield The Wild Boys Penny Erin Bob and Linda The Baker Family Tammy Roberta Cindy Martha Donna Jim, Rob, & Dan Cassie Martha Rob Patty Pam Sarah Terri The Day Family The O'Connors The Bennett Family Ruth James, Beth, & Lily Micah Jenn Julie Paul Fay Erica Jesi Susan B Sharon Kathy Karen Carin Monica Nichelle Sue M Mary Barbara The Ellis Family The Le Family The Sabino Family Mang Insurance Ryan Mangrum The Class of '97 Laura Rachel Eric Wcom Wendy CompassionNet Alicia Jan Gilligan's Frontier Dollar General Big M Service Pharmacy

Everyone who shared Marshall's links

Everyone who read Marshall's blogs

..and many more!

β€œIt is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds; who knows great enthusiasms, the great devotions; who spends himself in a worthy cause; who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who neither know victory nor defeat.” Theodore Roosevelt

“I believe in miracles, how ’bout you?”

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