Marshall is shedding fluid like a champ. And the team has begun the process of getting rid of things. They took him off dopamine. They took away the pacer. His saturations are great. His pressures are great. They also slightly decreased the oxygen in his vent. And there is mention of getting his chest closed […]
Marshall is in the same bed space (#23) as he was after his first surgery. If no one had told me he was him, I am not sure I would even recognize him as my own. To say the baby we saw last night looks like Frankenbaby isn’t intended to be rude. It is the […]
We Just talked with Dr Baird Surgery was a success. We now need to wait and see how the recovery goes. If he makes it through the next 8 hours, his chances will be very good. As for technical details, Dr Baird repaired the total anomalous pulmonary venous return and attached them where they belong […]
Dr Friedman stopped by following the medical – surgical meeting this morning. For the first time since Marshall first fell heart sick in May, the team is in absolute agreement. It’s unanimous. Going forward now is in his best interest. Apparently the team devoted more discussion to how they helped Marshall get well enough to […]
Celebrating early today with a nap because of this afternoon’s events… Yesterday’s cath knocked a lot out of Marshall and all he really has been doing is sleeping and eating. Which is good. My hope is he is laying here in my arms gathering his strength. Please keep our EIGHT month old baby and his […]
“Mama!!” 🙂 🙂 🙂 🙂
Tomorrow marks the one year anniversary of when we found out Marshall was a boy. And when we found out about Marshall’s extraordinary heart. Just remembering that day brings me to tears. To say this week has been easy would be a total, absolute lie. To say the weeks since we were freed from “Hotel […]
Marshall’s apointment with Dr Friedman went well. We have to have some blood work done and we will be on OUR WAY HOME 🙂 Echo looks good. Marshall looks great. He has gained some so it is a matter of optimizing his calorie intake…will fiddle with that after speaking with nutritionist. We will need to […]
To celebrate today, Marshall laughed through his meds thanks to the great distractions of Isaac and music. Annnd Marshall’s continuing to break his own weight records. So, for now, he is thriving. And his brothers are too! Tomorrow’s agenda includes an ice cream date with the wild boys, labs (taking back up this time), another […]
Marshall’s first meatball! There are not enough words to express our gratitude for the kindness and gifts our family received from the Sabino’s this a.m. They brought me to tears :-…)
themiracleofmarshall 