Marshall needs a centrifuge
Someone please connect us with someone who has a centrifuge. They cost more than double my first car – a whopping $10k. We need one for a few weeks until Marshall can resume his full fat diet.
Author Archives: mamawillloveyouforever
Tonight
Car seat test tonight. Labs, xray, echo tomorrow. Lets hope we land a hearing test Tuesday. And may I find my bed sooner vs. later..Holy Hannah I’m spent…
Echo = HOME
Dr. Friedman ordered an echocardiogram for tomorrow or the day as after. If Marshall can gain a little weight, we are OUTTA HERRREEEEEE! Friedman expects no later than FRIDAY!!
Look world, notice what is missing?
Marshall ripped out his NG tube during an xray today. The nurse agreed to let him eat without it for 24 hrs before they put it back in. So far, so good. (And I managed to get him to take a bottle too!) They also had to rebandage his belly from the “Supermom Terror Incident” […]
Please extend good thoughts
Life keeps putting people in our lives to remind us of where we could be and to take nothing for granted. Our roommate, beautiful, blond Baby K is a 14 month old. She and her parents have been here for 7.5 weeks. She is very, very, very sick. She can’t even sit up. From what […]
TOGETHER AGAIN
FINALLY all four of the wild boys are under the same roof!!!!!! MANY MANY MANY THANKS TO GRANDMA PENNY & ALL OF THE FOLKS WHO HELPED MAKE THIS MOMENT HAPPEN!!!!
Last night
I slept in a bed for the first time in 16 days. Michael stayed with our little miracle. Yes I freaked out. A lot. And when michael didnt reply to 3 texts, i called panicking. Everything was ok. There’s something restorative about getting away from hospital traffic, air, beeps, bells, & whistles. When I awoke […]
Adios N.P.O. & Oxygen
Marshall FINALLY got the ok to eat. Soooo his team gave him Pedialite? YECH. The good news is he did pretty well with it though and didn’t lose a drop from the bottle. And his dad & I cheered him on the whole time. The not-so-great news is he took in approximately 1/7 of what […]
