Cereal Smiles

MILESTONE MOMEMTS: In addition to enjoying solid foods, Marshall can now roll where he wants to go.  He will be running in no time at this rate ;-). This makes even less time for updating you all.  Marshall had his first-since-we-have-been-back-home pediatrician appointment yesterday. Despite the failing heart & scary diapers (which have lessened to […]

Marshall attended his first birthday party

And made his first visit to Chuck E. Cheese! Plus the big wild boys had an absolute BLAST! Happy birthday to Jamie! And many thanks to the O’Connor’s for the invite! What.a.busy.end.to.a.busy.weekend.  Our first weekend home included A (great) surprise visit from my grandparents, swimming, an impromptu dinner with Grandma Penny, Uncle Jim, Aunt Donna, […]

GREAT NEWS!

Noah (of Noah’s Hope for Heterotaxy) is off of ECMO per the latest update I found 🙂 PLEASE SEND SOME BIG, STRONG THOUGHTS & PRAYERS HIS WAY. And while you are at it, send some for Marshall too please.  He has follow up appointments this week with his local teams.  Many, many thanks!

Barely time to write this

Being home with all four of my boys yields such tremendous joy & extreme happiness paired with tremendous sadness.  I live moment to moment and don’t have a lot of peace in this exhausting chaos.  And the boys and I are constantly wondering when I have to leave with Marshall again.  Marshall’s bloodwork from Monday […]