A group of incredible people joined forces to host a benefit to support Marshall “The Miracle” Sepello. I don’t even know where to begin to thank them. Every kindness means the world to all of us on this rollercoaster ride as we help Marshall wage his war against congenital heart disease and heterotaxy. I would […]
Marshall was taken off of the vent!!! They did the extubation around 6 a.m. 🙂 He is tolerating it well so far. He has lots of secretions and has to have chest p.t. It seems when he struggles, he retracts his chest. Then they suction. And I am sure that makes him mad. So that […]
The team has finally begun the “take away” process. They are weaning down the vent and had to suspend feeds in that process (just in case they need to reintubate). They have taken away the morphine drips and replaced the suctioning chest drains with much smaller ones. They have moved to bolus Lasix rather than […]
As I have been sitting here watching my little miracle sleep and recover, I was hit by this wave of extreme gratitude. While the rest of the world is living their lives, complaining about the weather, hugging their kids, cleaning their houses, kicking back to watch t.v. and other wise living their lives, I am […]
Marshall is slowly being weaned from the sedation. I stepped out for a (really late) brunch and came back to Marshall in what the nurses call a “Welcome sleeve.” Seems he was up to his mischievous ways in the 1/2 hour I was out and was pulling at his vent and n.g. tube. I believe […]
Marshall is shedding fluid like a champ. And the team has begun the process of getting rid of things. They took him off dopamine. They took away the pacer. His saturations are great. His pressures are great. They also slightly decreased the oxygen in his vent. And there is mention of getting his chest closed […]
Since I can’t. Two days without Marshall in my arms is too much…and four days since I hugged my big wild boys is just as bad…
My apologies for not updating sooner. My phone is uncooperative and my Internet connection is wacky. Here’s what I know: Marshall is “stable” and “looks good.” That’s just the team’s opinion. He is my baby. He has been through hell and it shows. The good news is things are progressing slowly but surely. And very […]
Marshall’s stable but I refuse to share pictures of him when he is this sick. Please please please please please send him good thoughts, strong hopes, and big prayers if you believe in such things… Many many many thanks
