It has been one year since Marsh’s last (and failed Fontan) surgery. Life forever changed that day one year ago. And it will never be the same again.

It is so wonderful to see Marsh’s excitement and joy at school. And we have such a great team at S-E💖

His “maturity” led to the discovery of an umbilical hernia. 🤞 he feels better soon💖

He is taking her flowers to school!

With my special littlest ginger dinner date💖❤💖❤💖❤🥳

Marsh’s heart checked out great today. The gradient went up slightly from 4.9 mm to 5.3 mm but he is well enough to try to wean half a pill back on the evening dose of lasix! Thank you so much for all of the good thoughts and prayers. Return in EIGHT WEEKS🥳 Hugs and love❤