We had a super busy day yesterday with a trip to Hamilton, a visit with Nana (ran into Grandma Penny there what a surprise!) and then the kitten arrived.

And last week was something I just do not have the words to describe.

So we will stick to the here and now about how Marsh is:

Overall Marsh has much lower energy but a decent appetite. The cough is really wet but occasional. His oxygen sats seem to stick in the lower to mid 70s when awake but go as high as 85 when asleep.

He is exhausted today – like crying about the prospect of waking up. I can relate very well to that sentiment so I am letting him sleep. And then we work on the school piece after he is up and eats.

The new diuretic – Bumex – went in at 9:30 am (my gosh I hope it works 🤞 )

The pain in his fingers and toes hurts the most in the a.m. and p.m. so I am giving Tylenol and massage (in what looks like vain) to try to help.

We are waiting for Dr. Friedman and Super Smith to get back to me regarding another x-ray and follow up. (I don’t think the x-ray will happen until tomorrow since we got home too late Saturday to get to the pharmacy for the Bumex).

Thank you for the prayers and good thoughts. Please keep them coming.

And please forgive me for the rambling. Week three of running on little sleep and high adrenaline…

So many thanks, hugs, and love❤