Another day

Marshall gained weight again last night!!  His appetite has returned!! Hip-hip-HOORRRAYYY!

Overall, he is doing as ok as a kid with a failing ventricle can do. 

The great news is he is happy. 

And comfortable.  He likes to sleep by day in my arms and by night in his crib.  He enjoys the entertainment Michael and I provide. 

And these video chats with his brothers brighten our days in millions of ways. 

I live for these boys’ smiles.  πŸ™‚

So that’s that for now…

The plan going forward is his doctors are now going to tinker with his meds.
(I will let you know how well that goes    πŸ˜‰ ) There is buzz about an echo tomorrow and signing all the paperwork for Marshall’s placement on The List (for transplant ) before Thursday.

Have I mentioned lately how thankful I am for this entirely surreal experience and the support which frequently floods my eyes and heart?!!??  

One thought on “Another day

  1. The boys love chatting with you. They look forward to their next visit to Boston. I will work on it soon. Love you all.

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