Well, on the list of bad things, this is a minor offense.

I entirely hung up on the lady at [an organization I can’t mention because they’re way bigger than me…wait for the book].

This morning I called to request Marshall get evaluated as per our Boston discharge instructions. And per his pediatrician’s prescription for physical therapy. And per my raging instincts to give this little miracle the best life I can with every opportunity he needs to succeed. Though I do have a confession: I was supposed to call to arrange at least a consult with Early Intervention at two months. I realized today that I hadn’t remembered but nor had I forgotten. I’d lost the contact information for the nurse who called us during our first week back home and it slipped.

Oopsies happen.

Sadly, the woman who answered my call today gave me 15 minutes of circulatory arguments and justifications for why their organization can’t help. Ranging from “oh no it takes forty five days for him to be evaluated” to “if he’s having his second surgery, he won’t be able to do physical therapy because we arrange for six month periods.”

I tried to just convey information. And plead his case.

No. Luck. The response I got was a broken record on repeat.

Whoa. Brakes.
My voice was calm but my heart was screaming “HE HAS A ONE IN A MILLION HEART AND SURVIVED OPEN HEART SURGERY WHEN HE WAS SIX DAYS OLD. Doesn’t that warrant at the bare minimum an argument free evaluation???????”

Again, the response I got was a broken record on repeat.

That’s when I hung up. I don’t have the time to waste. Neither does our little miracle.

Which brings me to this: why do organizations like [the one I can’t mention] exist? Isn’t one of the reasons to help people access the services they need?

Needless, after I hung up, I gave Marshall’s pediatrician a call. And explained this latest plight. And ever so graciously, her nurse is looking into the best way to proceed to get Marshall the help he needs.

Thankfully…