Strong thoughts, big prayers, and long nights

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We all need to “Rock on!” as Isaac and Marshall suggested this a.m. as I was sipping coffee trying to recover from a near sleepless night…

So here we are.  And we are at it again… Please send us some good, strong thoughts and big prayers if possible.

First thing this a.m., we learned that a close family member to Marshall’s Aunt Donna’s is very ill.  So we are forwarding some of the good thoughts sent to Marshall…but also keeping some.

Marshall has been a bit more concerning all weekend  His breathing has been “funny” and he has thrown up twice. 

I spent much of the night and early morning holding him, laying in bed awake listening to him breathe, and willing myself to try to not panic. All of this after Dr. Friedman kindly answered my frantic email at 10 p.m. on a Saturday night.

Maybe it is just a cold.

Maybe it is not.

I am again (or is that still?) a lot worried about two yesterdays, yesterday, today, tomorrow, Tuesday, Wednesday….it never ends.

After a day of phone tag, ridiculously high stress, and rescheduled appointments on Friday (that story I am saving for his book…what a nightmare!), Marshall has a day full of tests and travels set for Monday. 

Hopefully an abdominal ultrasound tomorrow with the doctor performing the test (I plead with the nurse “But he is just an ordinary boy with an extraordinary heart!!!”) will reveal the status of his spleen.  Maybe just maybe we no longer have to limit visitors and stay home.

And even more hopefully, our trip to his cardiologist will go well. 

How will we get a hungry baby (he will have time for one feed post ultrasound after being NPO from 3:00 a.m. Monday on) to cooperate for a 2 hour car ride and then more poking/prodding?

It is going to take a miracle.

And fortunately for us, Marshall is one.

Big hugs, strong thoughts, and much love to all…

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