The CICU was full (as of last night.)

From what I’m seeing and what nurses have told me, the step down is full.

All of this and I wonder if every patient here feels like Marshall does.

It seems Marshall hates medical apparatus.

I won’t share the horrors of the ventilator experience.  Yesterday Marshall yanked 6 inches of his NG tube out. Today we pried his nasal cannula out of his hands at least 100 times. He kicks off his monitors regularly.   He Houdinis his leads.

This kid is something.

But he graduated.

No more CICU.  No more oxygen.  And best of all, no more being away from us.

We finally get to flex our parent muscles (under supervision until we demonstrate our ability to care for him)!!!!!

And per Dr C (who is really a nurse practitioner as I found out this evening) “Dr Luis must really like you. He gave you two weeks instead of a month of skimmed milk.” 

Perhaps. I think it is more likely that I have worn him out with my endless interrogations ;-). 

Im shooting for medical magic to appear out of thin air tomorrow.  Else we have a couple of weeks more in Boston as the chylous effusion gets treated.

Marshall’s team still must smooth out the details of the path going forward. It’s a bit worrisome but as Dr Baird said, “Leave the worrying to us.”

Tomorrow afternoon we will have more answers regarding this pesky air bubble.  And we will have skimmed milk for the hungry hungry little man.  Best of all, we get TIME WITH ALL FOUR WILD BOYS!!!!

We can’t thank everyone enough for the good thoughts and prayers.  Please keep sending them and perhaps extend them to the families here?